Live Donor Toolkit: Resources for Those Considering Live Donation

Live Donor Toolkit

Welcome to the Living Donor Financial and Medical Toolkits, sets of chapters about living donation. These toolkits were designed to add to the general information about living donation that you can find on transplant living or may have received from your transplant center. They were designed for people considering living donation, and their loved ones. We invite you to read the chapters of interest to you. Your transplant team can help answer any questions and may print specific chapters of relevance to you. These toolkits were designed by transplant professionals and living donors and approved by the American Society for Transplantation.

OUR SPONSOR

Sponsor

What are Live Donor Toolkits?

The shortfall between the demand and availability of organs for transplantation has never been greater. As of June 1, 2016, there were over 120,500 candidates awaiting transplantation. Last year, the United States performed 30,970 transplants- which would address just over a quarter of the number of individuals currently waiting for an organ.  These transplants were completed due to the gift of life from 15,066 organ donors in 2015, including 9,080 deceased donors and 5,986 living donors. While the numbers of both deceased and living donors were slightly up last year, there is still a critical shortage of organs for those in need.

Medical and psychosocial outcomes for live donors are generally quite good, and a reassuring 97.5% of live organ donors say they would donate again if they could. Living donation is a profound way to help a loved one—or even a stranger-- in need. That said, individuals considering living donation must consider the potential medical, psychosocial, and financial impacts associated with donating an organ.—and the transplant community currently lacks a centralized forum to provide education about live donation.

The AST's Live Donor Community of Practice (LDCOP), with the support of eleven other organizations, convened a Best Practices in Live Donation Consensus Conference in 2014, composed of a diverse group of transplant professionals, people with ESRD, and live donors. A high priority recommendation stemming from this meeting—achieving consensus amongst participants—was the creation of a centralized, neutral, high-quality live donor educational toolkit for those considering live donation. This resource is meant to: (1) improve the availability and delivery of quality education for those already considering live donation; (2), broaden live donation messaging to reach others, who might consider live donation if they knew more about it; and (3) reduce ‘recreating the wheel’ in educational content development across transplant centers. 

Following the consensus conference, and with strong support from the AST Board of Directors, an engaged group of 26 transplant expert LDCOP volunteers got to work building a series of pull-out educational chapters aimed at patients and professionals. These are housed under two umbrellas: the Live Donor Financial Toolkit and the Live Donor Medical Impact Toolkit, each with 10-15 stand-alone chapters. The Medical Impact Toolkit will have chapters written at the provider level (for primary care physicians and community nephrologists) and at the patient level.

The AST's Live Donor Community of Practice (LDCOP), with the support of eleven other organizations, convened a Best Practices in Live Donation Consensus Conference in 2014, composed of a diverse group of transplant professionals, people with ESRD, and live donors. A high priority recommendation stemming from this meeting - achieving consensus amongst participants - was the creation of a centralized, neutral, high-quality live donor educational toolkit for those considering live donation.

This resource is meant to:

  1. Improve the availability and delivery of quality education for those already considering live donation
  2. Broaden live donation messaging to reach others, who might consider live donation if they knew more about it
  3. Reduce 'recreating the wheel" in educational content development across transplant centers

Live Donor Financial Toolkit

What is the Live Donor Financial Toolkit?

Welcome to the Living Donor Financial Toolkit, a set of chapters about living donation and work, insurance, and finances. The medical costs of living donation are generally covered—but many donors worry about how surgical recovery might affect their jobs and budgets. This toolkit offers a cost estimator, and a series of chapters to help you plan and problem-solve. Topics include tips for speaking with your employer, grant and fundraising resources, buying insurance after donation, and military service. 

Learn More

Live Kidney Donor Medical Toolkit

What is the Live Kidney Donor Medical Toolkit?

Welcome to the Living Kidney Donor Medical Toolkit, a series of chapters about specific aspects of living kidney donor evaluation and experience. This toolkit was designed to add to the general information about living donation that you can find on transplant living, or may have received from your transplant center. Individual toolkit chapters address how a specific topic might affect your kidney donation evaluation, candidacy, and experience. Not all of the topics will apply to you, and we invite you to choose the chapters of interest to you. Your transplant team will also talk with you about your medical history and kidney donation.

Learn More

OUR SPONSOR

Sponsor